Share this article Share 'We stopped visiting most local attractions a couple of years ago when I stopped being able manage our Adam's toilet needs in back of our car. He doesn't understand why people won't help. He can't understand why grown ups aren't doing the right thing. I don't want him to be hurt anymore. It's a huge strain every day of our life.
Mike Le-Surf, of Changing Places, said the problem was stopping many people from leaving their house, because changing someone on a 'dirty floor' was 'not acceptable'. MailOnline interviewed parents across the country about their daily struggles of coping without fully accessible disabled toilets. Sam Buck, 44, whose son Alfie, ten, has cerebral palsy, said he no longer wants to lie on the floor of a toilet. She has started a petition calling for it to be a legal requirement for county councils to install Changing Places Toilets in all town centres.
I started campaigning about this when I went out in Horsham and I went into a disabled toilet in the town and there was nowhere for him to change, so I had to drag him out of his wheelchair and had to put him on the floor and see to his needs there.
Sam Buck, 44, whose son Alfie, ten, pictured has cerebral palsy, said he no longer wants to lie on the floor of a toilet pictured: I had meetings with our Tesco Extra which said there was space but then their head office rejected it. I am having to change him on the floor. I have to leave the door open as I can't get his chair in so my children or husband can pass nappies and wipes to me. He doesn't want to go on the floor anymore, but I often have to override that decision when we're out and about and desperate.
So many people don't know about this. That's why we are shouting about it. The days when people were told to shut up and stay at home are gone. It's , come on. Mr Newton, who was in the Army, told MailOnline: It means you have to leave after a certain time. Andrew Newton described the situation for his daughter Aniela, who has cerebral palsy, as 'grim' 'It has a baby feeding suite, which is all plush, but there's nowhere for my daughter to go. It's more the hygiene.
It might appear clean but sometimes there are stains on the floor and you're having to change her with the door open. We had a similar problem last year when we went to France. This deters people from travelling on public transport. North Yorkshire council has provided fully accessible toilets in most of their buildings. Society needs to play catch up. Owen, four, from Watford, who has cerebral palsy, holding up a sign saying 'nobody should have to lie on a toilet floor' Sheri Skelton said having to put her son, Owen, on the floor is a 'horrible decision' to make 'Without a bench and a hoist in an accessible toilet, I have to lie him on a filthy toilet floor to be changed.
Owen doesn't like having to lie on the floor and I don't like having to kneel. He can't control his limbs so I fear he might fall off the baby changing table, so he has to go on the floor which is a horrible decision to have to make. He cannot walk or talk and also has epilepsy.
Speaking to MailOnline, she said: Laura Moore, 40, said putting her son, William, on the toilet floor is 'unsafe and unhygienic' pictured in a council owned public toilet in their hometown of Worthing 'I have been trying to get stores to provide facilities for William but have had no success. We need somewhere clean so I can dress him but nowhere provides that.
There's no dignity at all for him. You need them somewhere else too. They say they haven't got the space and haven't got the money and then fall back on health and safety for their staff. He should not be asking "why not?
Rachel George pictured the toilet at Newquay Zoo that her son Adam could not even fit in Mrs George described the toilet at Newquay Zoo as 'appalling' and said it wasn't even possible to shut the door Adam, pictured in his local Tesco, where their baby changing room is larger than the toilet for disabled people 'It's not new equipment that's required. Hundreds of thousands of people are living on the outskirts of life and it's not OK. That was the turning point for me.
It has a knock on affect on carers as well. There is also limited space for Adam inside the McDonald's in Hayle, in West Cornwall, as highlighted by this picture 'We live in Cornwall and travel to Bristol Children's Hospital every six weeks for treatment. Because of the lack of accessible toilets, the entire journey is desperately worrying and uncomfortable. His friends recently went to the cinema but he actually pretended he was ill in the morning to get out of going - because he didn't want to have an accident.
He should not be thinking like that. He should be able to go. A trip to the cinema does not require physical ability. That meant when we went for a trip we had to find the important animals Adam wanted to see in an hour.
Restaurants, theatres, leisure centres and theme parks must provide Changing Places toilets. She needed to use the toilet but the accessible one was 'out of order' and her wheelchair could not fit down the aisles to get to another toilet on board. Ms Strike, a disabilities campaigner, was left to urinate on herself on the train and covered her face with her hoodie afterwards in case anyone recognised her. Lorna Fillingham, mother of six-year-old Emily-May, has started a petition 18 months ago campaigning to make Changing Places guidelines compulsory.
The year-old, from Scunthorpe, said: There were a couple of times over Christmas when I didn't dare use them, and so I had to keep her old nappies on. Lorna Fillingham, mother of six-year-old Emily-May, pictured together has started a petition 18 months ago campaigning to make Changing Places guidelines compulsory 'More and more often it's the latter, which is unsanitary, unhygienic, inhumane and undignified.
I don't know what body fluids may have spilled there, or what might have come in on someone's wheelchair wheels. Every hospital in the country should have suitable toilets for disabled people. But at the moment [since ] they are only recommended, rather than being compulsory. That means we've still only got in the country, so it shows that is not working. It is also completely degrading and humiliating for a disabled person to be put on the toilet floor.
It's neglect by the state in my opinion that vulnerable children in this country are not being looked after properly. You get so stressed when you go for a day out. I can feel myself getting worked up before I even look at the toilet facilities.
It breaks my heart that happens but people in power are doing nothing about it. A spokesman for Tesco said: We will update members of Changing Places with the results of our trial.